For families seeking medical treatment in the USA for rare conditions like DMD, finding expert care is crucial. Just as we've seen success stories in cancer treatment in the USA at MD Anderson and cirrhosis treatment at Mayo Clinic, this journey demonstrates why many families choose UCLA Medical Care for complex conditions.
But for one young boy from Thailand diagnosed with Duchenne Muscular Dystrophy (DMD), that hope became a reality thanks to Medebound HEALTH.
As a leading medical tourism agency in the United States specializing in international patient care USA, Medebound HEALTH helps families travel to the USA for medical treatment to access top children's hospitals USA.
As a 9+ year global second opinion and medical tourism company specializing in facilitating medical travel to America and China’s top hospitals, Medebound HEALTH arranged for the child to go to America for treatment at UCLA, one of the best hospitals in the USA.
Through expert care and advanced treatment options, this journey underscores the power of global healthcare access and the difference it can make in patients' lives.
Rare Disease Treatment: A Thai Family's DMD Diagnosis Journey
December 2023 started like any other month for a Thai family. Their 6-year-old son's laughter filled their home as he played beside his parents - a picture of childhood joy.
Like other patients seeking rare disease treatment in the USA, this family discovered that top hospitals in the USA offer innovative treatments unavailable elsewhere. Similar to Ms. Lin's successful journey at MD Anderson, proper guidance is crucial when you travel abroad for treatment.
Soon, that joy mixed with worry, and they noticed him falling frequently during daily activities. What seemed like typical childhood stumbles became a pattern that set off alarm bells.
The medical tests brought devastating news.
Their son's creatine kinase level had skyrocketed to 20,081 U/L, showing severe muscle damage. Genetic testing revealed deletions in exons 5-29 of the dystrophin gene, confirming a diagnosis of Duchenne Muscular Dystrophy (DMD).
Duchenne muscular dystrophy (DMD) is a genetic condition that primarily affects boys. It occurs when the body can't produce dystrophin, a protein essential for muscle function.Children typically show their first signs between ages 3 and 5, experiencing muscle weakness that starts in the legs and spreads to other muscles. Without treatment, patients often lose their ability to walk by age 20. The condition affects the heart and breathing muscles and can be life-threatening by age 30.
Their son's calf muscles were visibly enlarged, and his running and stair climbing had slowed significantly.
This is when they found Medebound HEALTH with 9 years of experience and a 95% patient satisfaction rate in assisting patients cross-border to reach the best care possible in the United States.
Finding Hope: When You Go to America for Treatment
Local doctors in Thailand had no advanced treatment options to offer. As parents learned more about DMD's progression, their anxiety grew.
Through consultation with American specialists and access to US DMD specialists, families find hope at America's leading medical centers. Just as the Mayo Clinic leads in liver treatment, UCLA excels in providing advanced DMD treatment.
They knew their son might lose his ability to walk independently if they didn't act quickly.
That's when they turned their attention to America's leading medical care.
Remote Consultations With US Top Doctors
The family connected with a renowned DMD expert - Dr. Stanley F. Nelson at UCLA Health - ranked #1 Top Hospital in California and the Best Hospital in Los Angeles.
The family connected with the best DMD Hospital experts at UCLA Health - ranked among the best hospitals in the USA and leading in pediatric care in America. Through our services for facilitating medical treatment abroad, they began with targeted video consultations.
Instead of rushing into international travel, they began with targeted video remote second opinions.
A Timeline of Hope and Progress:
First Consultation (May 17, 2024):
Dr. Nelson noted the DMD diagnosis needed additional confirmation.
Recommended a specialized muscle biopsy.
Suggested Vamorolone, a milder hormone treatment with fewer side effects.
Introduced the upcoming DUVYZAT™ drug (FDA approval pending).
Post-consultation action: Family secured Vamorolone in Thailand.
Second Consultation (June 14, 2024):
Confirmed that Vamorolone wouldn't affect biopsy results.
Explained the minimally invasive biopsy procedure (2mm incision, local anaesthesia).
Emphasized continued medication importance.
Scheduled tentative December 2024 biopsy.
Third Consultation (September 4, 2024):
Created a comprehensive treatment strategy combining Vamorolone and Duvyzat.
Provided specific guidelines for daily activities.
Addressed practical concerns about climbing, fever management, and calcium intake.
Dr. Nelson offered to help secure pharmaceutical company drug donations.
Set up a three-month medication supply plan.
Created blood test monitoring schedule.
While some patients travel overseas for medical treatment immediately, starting with remote consultations can be beneficial. As experienced medical facilitators for seeking treatment in the USA, we help families make informed decisions.
Travel to America: The UCLA Visit (October 2024):
On October 9, the family landed in California. They were welcomed by a professional team from Medebound HEALTH, arriving in a luxurious Audi SUV, and received with genuine warmth and hospitality.
After an hour of customs clearance assistance and careful luggage handling, they settled into their accommodation.
Hope Becomes Reality
The October 11 meeting marked a turning point. Dr. Nelson's detailed examination confirmed they had made the right choice.
The professor prescribed Duvyzat, the newest treatment option for DMD.
While awaiting both the medication and scheduled biopsy, the family felt a peace they hadn't known since the diagnosis.
For the first time, they saw a clear path forward for their child's care.
The Medebound HEALTH Way
From the first consultation through treatment coordination, Medebound HEALTH stood by this family's side at every step.
Our team handled everything from medical appointments to travel arrangements, making their U.S. medical care experience smooth and stress-free.
As agencies providing services for seeking medical treatment in the USA, we ensure comprehensive support.
Whether patients seek international medical care at UCLA, Mayo Clinic, or MD Anderson, our expertise guides them through every step.
The results speak for themselves: Dr. Nelson has prescribed Duvyzat, and while the family awaits both the new medication and planned biopsy, they know they're on the right path.
This success story goes beyond medical treatment. Meeting Dr. Nelson gave this family something priceless - hope for their child's future and confidence in their medical decisions.
The professor's expertise and caring approach helped transform their fear into optimism.
At Medebound HEALTH, we make these life-changing connections possible.
Our commitment to personalized medical consultation means every family gets the comprehensive support they need to find and access the best treatment options.
By connecting children with professional medical teams who understand their conditions, we're helping create brighter futures for families facing medical challenges.
The Medebound HEALTH Difference
What made this success story possible? Our approach puts families first:
Direct Doctor Access:
Immediate connection to top US specialists.
No waiting for hospital bureaucracy.
Faster appointment scheduling.
Direct communication with professors.
Cost-Effective Care:
No multiple agency fees.
Help with medication access programs.
Strategic use of remote consultations.
Efficient treatment planning.
Why Choose Medebound HEALTH?
95% Patient Satisfaction Rate - The Highest In Cross-Border Medical Consultation.
#1 Provider In US Premium Doctor Video Consultations.
Partnerships With Fortune 500 Insurance Groups Like Ping An And Taikang.
A Network Covering Experts From America's 72 Medical Specialties.
A Board Of Directors Made Up Of Senior US Hospital Leaders.
Take Action Against Your Troubling Condition Today
Don't wait - every day counts when you are diagnosed with a troubling condition. Contact Medebound HEALTH now:
Website: https://www.medeboundhealth.com/
Toll-Free US Number: +19173101780
Let us connect you with the USA's top 1% of doctors across 72 specialties, whether through video consultation or treatment in the US. Our team is ready to help you access world-class care at manageable costs.
One message can change your treatment journey. Contact us now, and let us guide you to the care you deserve.
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